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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Tracheostomy

I wonder if I project my own feelings on to him.

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I wonder if I project my own feelings on to him.

I wonder if I project my own feelings on to him.

The mom of a 12-year old with SMA Type 1 and a trach talks about the communication challenges and how she sometimes feels guilty about leaving him.

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Tracheostomy for my son?

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