Theme: Tracheostomy

The mom of a 12-year old with SMA1 talks about how she thinks about his quality of life, all things considered. “He can’t breathe on his own, that’s terrible, he needs nurses to help assist him to make him fantastic. That’s why he’s fantastic, he has fantastic nursing coverage, his parents know how to take care of him very well, he’s got a great environment, a lot of love and I think that’s the primary ingredient for your child to happy, is just to love them and spend time with them and do things with them.”