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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Siblings

Parenting a medically complex child and keeping the adult-age sister involved.

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Parenting a medically complex child and keeping the adult-age sister involved.

Parenting a medically complex child and keeping the adult-age sister involved.

June MSW, LICSW, ACHP-SW — mother of Katie (28), who is medically complex and likely has Rett Syndrome — and Alissa (23), talks about how she is introducing Alissa to some of Katie’s systems of care and legal documents because she is an integral part of Katie’s life.. “though I don’t want her to ever feel responsible for Katie’s care.”

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