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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Siblings

If the child is asking the question, it’s because they need to know.

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If the child is asking the question, it’s because they need to know.

If the child is asking the question, it’s because they need to know.

A mom of two daughters, one of whom has the life-limiting illness Canavan disease, talks about she always told her typical, unaffected daughter the truth, including about the genetics of the illness — and her daughter’s response. Simple answers don’t work for her.

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