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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Siblings

Julia grew up quickly, in the NICU, in waiting rooms.

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Julia grew up quickly, in the NICU, in waiting rooms.

Julia grew up quickly, in the NICU, in waiting rooms.

Parents of two children with a rare metabolic disorder talk about how their big sister become so comfortable in the hospital and with doctors, but what a toll is also took on her young childhood.

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