Theme: Shared Decision-Making

A physician on building alignment with the family: I start with “What is harm vs no harm for your child?” It brings us back to the child.

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A physician on building alignment with the family: I start with “What is harm vs no harm for your child?” It brings us back to the child.

A pediatric palliative care physician on how she finds a focal point for the parent caregivers to consider decisions, especially when the clinicians may have strong opinions that are different. “At the end of the day I am not the one who has to live with the consequences, the ramifications of a decision that is made about a child. … I want to understand from the parents how they define what is harmful. . . Going back to basics.”