Theme: Shared Decision-Making

A palliative care MD: “We need to try to understand what the parent's motivation is; and not shy away from pain.”

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A palliative care MD: “We need to try to understand what the parent's motivation is; and not shy away from pain.”

A palliative care doctor encourages clinicians to really lean in to what the child and parents are experiencing and need; and then to acknowledge how hard that can be and take care of themselves afterwards. A dad observes that bringing compassion is critical to providing care.