Theme: Shared Decision-Making

Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries

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Parenting a Medically Complex Child: Decision Making Re Tubes and Surgeries

In this clip from Courageous Parents Network’s virtual video interview with Brenda Murray, Brenda thoughtfully shares the spectrum of interventions they considered and the decisions they ultimately made for Sam as they balanced the risks vs benefits: Yes to Feeding Tube, No to Hip Surgery, No to Spinal Fusion, No to Trach. These are all big decisions. “There is a lot of guilt. What if you don’t do it?”
The doctor looked at me and said, “You’re not a bad mother if you decide not to do this.”
She talks about who her sounding boards were — family, social worker, pediatricians.