Theme: Shared Decision-Making

Getting Clarity—Parents can say, “This is what I’m worried about. Should I be?”

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Getting Clarity—Parents can say, “This is what I’m worried about. Should I be?”

A bereaved mom and parent advocate says for parents — “if you find yourself in a situation where the team isn’t helping out, you can say, try. “This is what we understand is going on, are we correct that this is in fact going on? This is our major concern. Should we be worried about this?” Meanwhile, providers can lead with, “what is your main concern? Or what is your thinking, what is your understanding of what is going on?”