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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Shared Decision-Making

Offering parents information and giving them the space to reflect: Are we getting the right balance?

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Offering parents information and giving them the space to reflect: Are we getting the right balance?

Offering parents information and giving them the space to reflect: Are we getting the right balance?

The mother of a boy with severe neurological impairment and his pediatric palliative care doctor talk about how parents look to the clinician for permission not to pursue more tests or treatments, and how the clinician worries about getting the right balance between benefits and downside of what they can and can’t do. And how this process takes time.

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