Theme: Shared Decision-Making

Getting Clarity—Parents can say, “Th...

I always want parents to know they have ...

When there isn’t more treatment to be ...

He gave us the lead on what decisions to...

Our pediatrician has been nudging us: �...

Re feeding tubes: It’s about aski...

For each intervention, we asked, “Is t...

The Medical Team: You want a sense of be...

It becomes about a good fit.

There’s no ONE conversation.

You can change your mind re treatment an...

We Are Going to Take One Day at a Time