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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Shared Decision-Making

The road to DNR: Only when the situation called for it; timing is everything.

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The road to DNR: Only when the situation called for it; timing is everything.

The road to DNR: Only when the situation called for it; timing is everything.

The mom of a baby with Krabbe describes the way she considered her decision-making in different emergency situations (related to his breathing), and working with the EMTs. “It was like being in a sadistic game show. Which option do I pick?” As his condition progressed, her decisions changed. (This video is complicated but clear.)

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