Theme: Shared Decision-Making

Parenting a Medically Complex Child: Dec...

Spinal Fusion Surgery: Creating a space ...

Spinal Fusion Surgery: Decision-making i...

Spinal Fusion Surgery: NO is always an o...

Offering parents information and giving ...

Problems of the CNS: What are family’s...

Evaluating: Does it make sense to run mo...

The doctor explained: not doing a feedin...

We were actively protecting her from thi...

I want parents to know to be empowered.

When it’s not a good fit.

It’s exhausting to sort out all the di...