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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Shared Decision-Making

We were actively protecting her from things that wouldn’t be right for her.

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We were actively protecting her from things that wouldn’t be right for her.

We were actively protecting her from things that wouldn’t be right for her.

The mother of an infant shares how electing NOT to choose medical interventions at first felt like she wasn’t actively caring for her child and how palliative care helped her understand that ‘doing things’ wasn’t necessarily protecting or helping her daughter. Reframing to see that sometimes less is more.

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