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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Shared Decision-Making

When it’s not a good fit.

Page: 3 of 6

When it’s not a good fit.

When it’s not a good fit.

The mother and father of a 5-year old with Leigh’s Disease, a mitochondrial condition, talk about the troubles, lack of initiative and disconnect they had with their daughter’s first specialist.

“When you have a doctor you’re supposed to trust making you feel inadequate, it’s not a good fit.”

“If the doctor’s don’t want to listen to another doctor, find another doctor.”

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