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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Shared Decision-Making

Helping parents navigate decision-making. It’s rare that everyone is in the same place.

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Helping parents navigate decision-making. It’s rare that everyone is in the same place.

Helping parents navigate decision-making. It’s rare that everyone is in the same place.

Dr. Terri Major-Kincade describes many of the ways that parents are not in the same place and medical teams aren’t in the same place, and gives concrete examples of how she talks to families to help them embrace the Now while attending to what may happen in the future, including demands. “A decision today does not preclude a decision for the future. Sometimes those decisions come up sooner than you think. You will have opportunities to continue to have this conversation and meet in the middle about what’s most important to your family.”

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