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Home > Receiving The Diagnosis > Themes

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Theme: Receiving the Diagnosis

Wondering if your child is going to be the exception. “There are always those cases.”

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Wondering if your child is going to be the exception. “There are always those cases.”

Wondering if your child is going to be the exception. “There are always those cases.”

Parents Jordan and Julia describe how their baby daughter’s diagnosis of Infantile Epileptic Encephalopathy came with a “100% failure to thrive” prognosis and how they each internalized this in their own way and own time.

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