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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Receiving The Diagnosis > Themes

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Theme: Receiving the Diagnosis

With the diagnosis comes the need to DO SOMETHING! (CLN2 / Batten)

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With the diagnosis comes the need to DO SOMETHING! (CLN2 / Batten)

With the diagnosis comes the need to DO SOMETHING! (CLN2 / Batten)

Parents of two sons, one of whom has CLN2 (Batten disease), talk about the urgency parents feel to do something from the moment of diagnosis on — participate in a trial, raising money, supporting other families.

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