Newsletter Signup Contact Donate

Courageous Parents Network

About

Initiatives

Contact Donate Newsletter Signup

Search entire library or by microsite

Media Library

Navigating Medical Complexity Coping With Loss Neurojourney

Search

Search entire library or by microsite

Media Library Navigating Medical Complexity Coping With Loss

Click here for NeuroJourney resources

Home > Receiving The Diagnosis > Themes

SHARE

Videos

Theme: Receiving the Diagnosis

SMA ran in the family, and then it hit us in the face.

Page: 4 of 4

SMA ran in the family, and then it hit us in the face.

SMA ran in the family, and then it hit us in the face.

Parents of a boy with SMA Type 1 describe their son, what he loved, his personality, and then how he was diagnosed with SMA. The grandmother recognized the early symptoms as her son (Michael’s uncle) died from SMA at 15 months. “if there was a family to be born into with SMA, we were the one.”

SHARE

37 / 39

Related Resources