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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Receiving The Diagnosis > Themes

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Theme: Receiving the Diagnosis

The Diagnostic Odyssey: It never occurred to me that it would be fatal.

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The Diagnostic Odyssey: It never occurred to me that it would be fatal.

The Diagnostic Odyssey: It never occurred to me that it would be fatal.

The parents of a little girl recount their journey from their daughter’s healthy first few months, to intuiting something wasn’t right (delays, symptoms), to the devastating diagnosis of Gaucher Type 2.

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