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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Receiving The Diagnosis > Themes

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Theme: Receiving the Diagnosis

So I started questioning …. And it was devastating.

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So I started questioning …. And it was devastating.

So I started questioning …. And it was devastating.

The mother of a 12-year old with SMA Type 1 tells the story of his diagnosis: early signs, her gut instinct, the event that precipitated the diagnosis, her reaction. “It’s devastating to know that there is no way to fix it.”

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