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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Palliative Care

Anticipatory Guidance: Dr. Hauer helped me anticipate how the end might look, coming on slowly.

Page: 7 of 9

Anticipatory Guidance: Dr. Hauer helped me anticipate how the end might look, coming on slowly.

Anticipatory Guidance: Dr. Hauer helped me anticipate how the end might look, coming on slowly.

The mother of a boy with severe neurological impairment talks about how her son’s palliative care doctor shared what she anticipated would happen when his body eventually (and slowly) shuts down. The mom then describes what it did look like – the first indication – and how she was thus prepared. “This helped me when the end of his journey did come.”

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