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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Palliative Care

Palliative Care: I was able to unburden my worries to one person … and then the care conference allowed us to talk about everything.

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Palliative Care: I was able to unburden my worries to one person … and then the care conference allowed us to talk about everything.

Palliative Care: I was able to unburden my worries to one person … and then the care conference allowed us to talk about everything.

In this Zoom interview with CPN, Michelle — mother of Alex (age 7) and Julianna, who was diagnosed with a severe form of Charcot-Marie-Tooth disease — articulates how palliative care helped her specifically. The care conference at the last hospitalization, the conversation about trach and trajectory, and hospice.

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