Theme: Pain

It was like this little secret society.

“We worked for two or three long years with the palliative care team to finally get good days with this boy who now has this smile and no pain. This was a work in progress that we did to get this boy a quality of life that we perfected. If he needs serious meds, he needs serious meds.” The mom of two sons with mitochondrial disease and their pediatric palliative care nurse talk about how they worked together to get her sons comfortable.