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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: No Diagnosis

Undiagnosed: “You can’t put your life on hold until this resolves because this may never resolve”

Undiagnosed: “You can’t put your life on hold until this resolves because this may never resolve”

Undiagnosed: “You can’t put your life on hold until this resolves because this may never resolve”

June MSW, LICSW, ACHP-SW, mother of Katie (28), who is medically complex and likely has Rett Syndrome, talks about the early years when everything felt so critical and intense, and then how one adapts and begins making plans for the rest of your life too.

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