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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: NICU

Being our child’s advocate: “Every decision that was made medical was absolutely necessary. And then we knew when his body had endured enough.”

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Being our child’s advocate: “Every decision that was made medical was absolutely necessary. And then we knew when his body had endured enough.”

Being our child’s advocate: “Every decision that was made medical was absolutely necessary. And then we knew when his body had endured enough.”

Parents of a baby son who was born with severe Arteriovenous Malformation (AVM) talk about how they became core members of their child’s team and helped promote communication amongst the team members as they opted for every procedure that might help, with the understanding that their son could die in the procedures. It was challenging but there was incredible hope.

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