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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: NICU

A bereaved mom: “I battled with guilt for a long time. Did we do her a disservice by keeping her on this earth for 5 months? I am learning to relinquish that because we had no clue.”

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A bereaved mom: “I battled with guilt for a long time. Did we do her a disservice by keeping her on this earth for 5 months? I am learning to relinquish that because we had no clue.”

A bereaved mom: “I battled with guilt for a long time. Did we do her a disservice by keeping her on this earth for 5 months? I am learning to relinquish that because we had no clue.”

A bereaved mother learns self-compassion in reflecting on decisions to keep her daughter alive for five months in the NICU, hoping and hoping she could eventually come home. “I get peace from realizing I would do the same thing all over again. … You don’t know what you don’t know. … There’s no blueprint on what is the right or wrong decision.”

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