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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: NICU

“I wish palliative care had arrived three weeks earlier… It was such a relief.”

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“I wish palliative care had arrived three weeks earlier… It was such a relief.”

“I wish palliative care had arrived three weeks earlier… It was such a relief.”

Parents of a child with a very rare genetic condition talk about the relief they felt when they were finally able to meet with the palliative care team. Palliative care brought them more concrete answers about how their son’s life might look and made them feel less isolated and alone as a rare family.

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