A mom talks about deciding to put her daughter into hospice care — “It was a huge reality check.” — and the benefits of hospice. With her hospice team, she decided her care goals for her daughter and which treatments and interventions she would and wouldn’t elect. Grief counselor Nancy Frumer Styron talks about how ‘hope changes over time.’ As it becomes clear that a cure isn’t going to happen, the hope shifts and parents hope for other things for their child. A mom talks about how hope and priorities shifted when she decided to stop chemo treatments for her son, and how scary this shift felt for her. “Eventually I realized I can’t live my life every day like he’s going to die. It took a few weeks and then we started living again.”
