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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Hope

We are a Medically Complex Family. It is the Fabric of Who We Are.

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We are a Medically Complex Family. It is the Fabric of Who We Are.

We are a Medically Complex Family. It is the Fabric of Who We Are.

In this video, a mother of two sons with Duchenne Muscular Dystrophy and one with a primary immune deficiency talks her sons Austin and Max understanding their own life-limiting diagnosis, normalizing it within their family and the impact it has had on both boys.

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