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It has taken the specialists 11 years to...
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Decision-Making: We created a space wher...
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I can only think out a few years.
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The Medical Team: You want a sense of be...
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You can change your mind re treatment an...
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I need his life to be good NOW.
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We knew we wanted him to be home.
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MD: Parents–Don’t underestimate ...
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Videos
Theme: Goals of Care
A Rare Diagnosis: “I knew he wasn’t going to be the exception . . . I had to connect the dots. No one else did that for me. But then on the backside, clinicians said, I would have made the same decision.”
Page: 7 of 7
A Rare Diagnosis: “I knew he wasn’t going to be the exception . . . I had to connect the dots. No one else did that for me. But then on the backside, clinicians said, I would have made the same decision.”
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