Theme: Goals of Care

Intractable problems regulated by the CNS: Fix vs Modify. Asking to understand “I can’t make it better.”

Page: 7 of 7

Intractable problems regulated by the CNS: Fix vs Modify. Asking to understand “I can’t make it better.”

A pediatric palliative care doctor who specializes in children with severe neurological impairment talks about managing intractable problems. “It becomes a balance of how much more bang for your buck can you get with either new trials or will you get just a higher degree of side effects with less added benefit. … that’s a natural point in time to revisit goals, revisit life sustaining interventions or life sustaining treatment that’s already in place.”