Theme: Goals of Care

Slowly realizing there is no way we're going to beat this thing.

Page: 7 of 7

Slowly realizing there is no way we're going to beat this thing.

Parents of two children struggling with a life-limiting disease describe coming to terms with the reality that even with the best medical team, they could not stabilize and save their children, and how exhausting and harrowing the relentless hospital experience was for the entire family, including their older daughter.

The dad describes his shift from confidence and optimism to an awareness that his children were suffering.The goal became about getting home.