Theme: Goals of Care

Not once did we think we’d have any regrets.

Page: 7 of 7

Not once did we think we’d have any regrets.

Parents of a little boy with SMA knew what they wanted and never looked back. “We weren’t going to take away his ability to eat or his ability to talk.”

We weren’t going back to the hospital.
Stopping curative medication.
I can only think out a few years.
The Medical Team: You want a sense of be...
You can change your mind re treatment an...
I need his life to be good NOW.
We knew we wanted him to be home.
MD: Parents–Don’t underestimate ...

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Theme: Goals of Care

Not once did we think we’d have any regrets.

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