Theme: Goals of Care

Decisions start from Day One.

Page: 7 of 7

Decisions start from Day One.

Grief counselor Nancy Frumer Styron discusses the range of decisions that parents face, right from the beginning: practical, logistical, financial, familial. And then throughout there are medical decisions that come up: feeding tubes, pain medication levels etc. And decisions about end-of-life: home or hospital. A mother reflects upon her fear that she wouldn’t make the right decisions for her son, that the medicine would take over, but that ultimately she is proud of the decisions she made on her son’s behalf.