Theme: Goals of Care

Our pediatrician has been nudging us: “Are you sure you want to do these things?” Comfort Care.

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Our pediatrician has been nudging us: “Are you sure you want to do these things?” Comfort Care.

A mother of a 22-month old with leukodystrophy talks about how their pediatrician is helping them consider their goals of care for their child, and helping them think about which interventions they want for their child. “The providers respect our choices but are helping us not treat her just to treat her. Our goal is comfort care.”