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The doctor explained: not doing a feedin...
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We were actively protecting her from thi...
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No one wants to feel like they’re ‘g...
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Slowly realizing there is no way we̵...
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When he asks to do something, you just w...
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I felt like I had a clock ticking down i...
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I did not want to isolate him. He loves ...
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I was scared of losing him. I was scared...
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Not once did we think we’d have any re...
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Spinal surgery for my son? The most diff...
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Always hoping we can make it a little bi...
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I always want parents to know they have ...
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Videos
Theme: Goals of Care
Tay-Sachs: We learned to avoid the hospital if possible
Page: 5 of 7
Tay-Sachs: We learned to avoid the hospital if possible
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