Theme: Goals of Care

Tay-Sachs: We learned to avoid the hospi...

Twin brothers, two children with Tay-Sac...

Parenting a Medically Complex Child: fin...

Parenting a Medically Complex Child: Dec...

Parenting a Medically Complex Child: Shi...

Spinal Surgery: These children have rich...

This is How We Live: This Thing Called B...

With problems of the CNS, we can’t be ...

Offering parents information and giving ...

Palliative care is because of what we ha...

Problems of the CNS: Is this a new acute...

Intractable problems regulated by the CN...