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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Goals of Care

Parenting a medically complex child, and finding balance: Not every decision is critical.

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Parenting a medically complex child, and finding balance: Not every decision is critical.

Parenting a medically complex child, and finding balance: Not every decision is critical.

June MSW, LICSW, ACHP-SW, mother of Katie (28), who is medically complex and likely has Rett Syndrome, shares the peril that parents feel that every decision they make is a critical decision and that there is always more medical consults they could do. “I encourage families to think about who their most trusted providers are who they feel will help them make the best decisions.”

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