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There was a lot of veiled language aroun...
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A Rare Diagnosis: “I knew he wasn’t ...
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![Regret re decision-making about interventions: “If we as parents center our child’s experience [not our fear of guilt], with every choice, I don’t see how we can go wrong.”](https://img.youtube.com/vi/3lskDTij76o/maxresdefault.jpg)
Regret re decision-making about interven...
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“It was a journey of contradictions.�...
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Finding the way forward: “Giving her t...
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Evolving as parents: from feeling shocke...
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Dropping the illusion of control: Shifti...
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Clinical Psychology: children don’...
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“We should talk.” Advance Ca...
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Marfan Syndrome: He had 26 doctors and s...
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A social worker – To process regre...
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In the Zoom Room Recording: What does a ...
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Videos
Theme: Goals of Care
A Rare Diagnosis: “I knew he wasn’t going to be the exception . . . I had to connect the dots. No one else did that for me. But then on the backside, clinicians said, I would have made the same decision.”
Page: 2 of 7
A Rare Diagnosis: “I knew he wasn’t going to be the exception . . . I had to connect the dots. No one else did that for me. But then on the backside, clinicians said, I would have made the same decision.”
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