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Theme: Goals of Care

Parenting a Medically Complex Child: finding palliative care and how it helped

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Parenting a Medically Complex Child: finding palliative care and how it helped

Parenting a Medically Complex Child: finding palliative care and how it helped

In this clip from Courageous Parents Network’s virtual video interview with Brenda Murray, Brenda discusses how she found palliative care — “When we started to shift our focus of cure to comfort with Sam, I started to express that at every appointment and to whoever I came in contact with” — and the referral from a nurse that ultimately made all the difference in their ability to care for Sam. She describes the various ways that palliative care supported them — in appointments, care planning, end-of-life.

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