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Theme: Feeding Tubes

A Mom on deciding about a feeding tube for her child

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A Mom on deciding about a feeding tube for her child

A Mom on deciding about a feeding tube for her child

In this Zoom interview with CPN, Michelle — mother of Alex (age 7) and Julianna, who had a severe form of Charcot-Marie-Tooth disease and died at age 5 — shares how the feeding tube intervention was to help Julianna get nutrition but led to medical complications. Julianna went from the G-Tube to the GJ-Tube.

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