Theme: Feeding Tubes

How we thought about a feeding tube or no feeding tube.

Page: 2 of 2

How we thought about a feeding tube or no feeding tube.

The mom of a child with Sanfilippo talks about how she and her husband thought about how they considered the possibility of a feeding tube. They met regularly with the GI doctor and discussed triggers and timing and implications for decision-making.

She needs the G-Tube so her body can res...
Decision-Making: We created a space wher...
Palliative care helps reframe interventi...
Re feeding tubes: It’s about aski...

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Theme: Feeding Tubes

How we thought about a feeding tube or no feeding tube.

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