Theme: Communicating about the Diagnosis

A mother to clinicians: “You have to be mindful of your words. Always leave a little room for hope.” And to parents: There is always light.”

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A mother to clinicians: “You have to be mindful of your words. Always leave a little room for hope.” And to parents: There is always light.”

The mom of a little boy born very prematurely tells the story of a conversation with a doctor who told her not to expect her son would walk in a very insensitive way. It could have been said so differently. “I remember how she made me feel. .. Always leave a little room for hope. You need to give parents something to look forward to.” She offers other suggestions too, including such wise words for parents.