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Navigating Medical Complexity Coping With Loss Neurojourney

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Home > Caregiver Self Care > Themes

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Theme: Caregiver self-care

Parenting a medically complex child: Letting go of the PUSH and the expectations.

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Parenting a medically complex child: Letting go of the PUSH and the expectations.

Parenting a medically complex child: Letting go of the PUSH and the expectations.

June MSW, LICSW, ACHP-SW, mother of Katie (28), who is medically complex and likely has Rett Syndrome, discusses how hard they would work and hope in the early years for progress and a change, how overwhelming the To-Do list was from specialists, and the pressure she felt to be a good parent. And how she had to shift her expectations and give herself permission to set her own priorities.

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