Theme: Bereavement: The Grief Experience

“It’s a deep wisdom you come away with at the cost of extreme suffering.”

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“It’s a deep wisdom you come away with at the cost of extreme suffering.”

Bereaved parents of a baby with an Arteriovenous Malformation (AVM) talk honestly but gently about the profound lessons they’ve learned from their experience, their grief, and how they struggle with all of that. “For families like ours, who’ve watched your child die, it just opens up a world that’s intricately and infinitely more complicated than we could have anticipated and we knew we were embarking on that when Sage got the diagnosis.” It comes down to the question of “What do you do?”