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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Advance Care Planning

It's helpful to ask questions about end-of-life. You can never have too much information. It is good to have a plan.

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It's helpful to ask questions about end-of-life. You can never have too much information. It is good to have a plan.

It's helpful to ask questions about end-of-life. You can never have too much information. It is good to have a plan.

The mom of two children with a life-threatening disease shares some of the questions she had about preparing for end-of-life and what she did: I was grasping at straws about what it would look like. What bed do we lay in? How will we feel after they die – will we still want to lay in the same room? What clothes do they wear? Do you have a person to call that can bring you food?

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