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Navigating Medical Complexity Coping With Loss Neurojourney

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Theme: Advance Care Planning

Adding Hospice to the Care Team

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Adding Hospice to the Care Team

Adding Hospice to the Care Team

The mother of a son with Neonatal Marfan Syndrome recalls how a shift in her son’s baseline signaled to them that they should introduce hospice and palliative care into his care plan and speaks to how she began thinking about her son’s end of life.

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