Blyth T. Lord
Executive Director
Blyth founded Courageous Parents Network in 2014, 13 years after the death of her daughter and nephew from infantile Tay-Sachs. Building on her career in television production and distance learning, she conceived of CPN as a way to bring the voices and lived experience of parents and clinicians to families actively caring for children with illness. She has worked with leaders in pediatric palliative care —doctors, nurses and nurse practitioners, social workers, patient advocacy groups, palliative and hospice care providers—as well as with families. She serves on the board of National Tay-Sachs and Allied Diseases Association, where she helps oversee NTSAD’s family support services, and in CPN’s liaison role to the American Academy of Pediatrics’ Section on Hospice and Palliative Medicine. In 2021, Blyth received the Presidential Citation for Palliative Care Advocacy from AAHPM.
Blyth received her BA in History from Yale College and a Masters in Education from Harvard University.
Blyth received her BA in History from Yale College and a Masters in Education from Harvard University.
Jennifer Siedman
Director of Community Engagement
Blyth founded Courageous Parents Network in 2014, 13 years after the death of her daughter and nephew from infantile Tay-Sachs. Building on her career in television production and distance learning, she conceived of CPN as a way to bring the voices and lived experience of parents and clinicians to families actively caring for children with illness. She has worked with leaders in pediatric palliative care —doctors, nurses and nurse practitioners, social workers, patient advocacy groups, palliative and hospice care providers—as well as with families. She serves on the board of National Tay-Sachs and Allied Diseases Association, where she helps oversee NTSAD’s family support services, and in CPN’s liaison role to the American Academy of Pediatrics’ Section on Hospice and Palliative Medicine. In 2021, Blyth received the Presidential Citation for Palliative Care Advocacy from AAHPM.
Blyth received her BA in History from Yale College and a Masters in Education from Harvard University.
Blyth received her BA in History from Yale College and a Masters in Education from Harvard University.
Chrissy Salley, PhD
Director of Clinician Education and Engagement
Chrissy brings to CPN her experience as a psychologist with expertise in delivering support and intervention to parents and caregivers of children with complex medical needs. She is actively involved in the Society of Pediatric Psychology, Division 54 of the American Psychological Association. In addition to co-authoring the Standards of Psychosocial Care for Parents of Children with Cancer, she has founded a professional group of pediatric psychologists who are committed to supporting parent caregivers through clinical intervention, research, education and outreach. Chrissy also collaborates with colleagues nationally and internationally on efforts to improve the illness experience for children and their families and publishes on these topics.
Chrissy received her PhD in Clinical Psychology from The Ohio State University. She is an Assistant Clinical Professor, for the Department of Psychiatry at the Icahn School of Medicine at Mount Sinai.
Chrissy received her PhD in Clinical Psychology from The Ohio State University. She is an Assistant Clinical Professor, for the Department of Psychiatry at the Icahn School of Medicine at Mount Sinai.
Alison Me
Manager, Content Production
Alison utilizes more than 10 years of marketing and communications experience to support CPN’s programs. The organization benefits from her attention to detail and ability to manage numerous tasks at once, as does her family. The mom of two young children, she relates to families’ desire to make good decisions and says, “I understand that parenting is a challenge, even on the best of days.”
Alison received her BS in Environmental Science from Muhlenberg College and her MA in Energy and Environmental Analysis from Boston University.
Alison received her BS in Environmental Science from Muhlenberg College and her MA in Energy and Environmental Analysis from Boston University.
Claire Mills
Manager, Marketing and Communications
Claire graduated with a BA in Psychology from Boston College. Claire is interested in understanding the ways in which organizations can make change in society and specifically, the ways in which CPN helps make a difference in the lives of the families it serves. Claire is an active listener and a sympathetic voice who contributes her communication and organizational skills to the work of the CPN team.
Laura Will
Associate, Story Curation
Laura is a mother to a child with a life-limiting condition, an avid reader and writer, and a nurse. Her work has been featured in Positively Rare, the AAP Hospice and Palliative Care Newsletter, and the documentary film Dragon Mom. She serves on her local Commission on Disability and on a Parental Advisory Board supporting adaptive recreation programs. The writing of other courageous parents and passionate clinicians has shaped her advocacy, emotional life, and caregiving. At CPN, she works to connect, honor, and amplify the voices of families and clinicians.
Laura earned a bachelor’s degree in biopsychology from Bates College and a master’s degree in nursing from Columbia University.
Laura earned a bachelor’s degree in biopsychology from Bates College and a master’s degree in nursing from Columbia University.
Naomi Williams
Associate, Social Media
Laura is a mother to a child with a life-limiting condition, an avid reader and writer, and a nurse. Her work has been featured in Positively Rare, the AAP Hospice and Palliative Care Newsletter, and the documentary film Dragon Mom. She serves on her local Commission on Disability and on a Parental Advisory Board supporting adaptive recreation programs. The writing of other courageous parents and passionate clinicians has shaped her advocacy, emotional life, and caregiving. At CPN, she works to connect, honor, and amplify the voices of families and clinicians.
Laura earned a bachelor’s degree in biopsychology from Bates College and a master’s degree in nursing from Columbia University.
Laura earned a bachelor’s degree in biopsychology from Bates College and a master’s degree in nursing from Columbia University.
Z Brewer
Director, Digital Product
Courageous Parents Network’s content management system and site are overseen by developer extraordinaire Z Brewer. We could not do this without him!
Devin Rojas
Platform Engineer
Devin works alongside Zach, developing new features to ensure that the Courageous Parents Network website experience is enjoyable and accessible to all. His prior experience in operations and customer service have made him a passionate advocate for users and their interests and needs.
Board Members
Becky Aures, MD – Pediatric Critical Care Attending, Mass General Brigham for Children
Eric Bartholomae – Former EVP Finance, Wolters Kluwer
Amy Brin – Principal, Amy Brin Consulting, LLC
Sarah Burnett, NP – Pediatric Nurse Practitioner, St. Louis Children’s Hospital
Lee Cohen – Former Managing Director, Wellington Management
Gay Grossman – Patient Engagement Liaison, GeneDx
George Gulu – Senior Director, Digital Journey & Web Performance, JLL
Diane Meier, MD – Director Emeritus, Center to Advance Palliative Care (CAPC)
Julia Ong – Senior Counsel, Vertex Pharmaceuticals
Irina Ridley – Chief Legal Officer, Aerin Medical, Inc.
Myra Sack – Founder, E-motion
Kate Tighe, Chair – VP, Head, US Public Affairs & Patient Advocacy – Immunology, Sanofi
Kendra Wilde – Founder, Host, Wild Peace for Parents, A Little Easier podcast series
Lisa Resneck Wyett – Mark Harris Stationers
Eric Bartholomae – Former EVP Finance, Wolters Kluwer
Amy Brin – Principal, Amy Brin Consulting, LLC
Sarah Burnett, NP – Pediatric Nurse Practitioner, St. Louis Children’s Hospital
Lee Cohen – Former Managing Director, Wellington Management
Gay Grossman – Patient Engagement Liaison, GeneDx
George Gulu – Senior Director, Digital Journey & Web Performance, JLL
Diane Meier, MD – Director Emeritus, Center to Advance Palliative Care (CAPC)
Julia Ong – Senior Counsel, Vertex Pharmaceuticals
Irina Ridley – Chief Legal Officer, Aerin Medical, Inc.
Myra Sack – Founder, E-motion
Kate Tighe, Chair – VP, Head, US Public Affairs & Patient Advocacy – Immunology, Sanofi
Kendra Wilde – Founder, Host, Wild Peace for Parents, A Little Easier podcast series
Lisa Resneck Wyett – Mark Harris Stationers
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