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Learning our son had a rare genetic dise...
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I wanted to be strong for her but there ...
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There is no road map when the diagnosis ...
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The diagnosis didn’t change anything. ...
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A genetic diagnosis: I had to get over t...
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Sharing the news of a genetic diagnosis ...
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Support in the home: Having the support ...
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Letting God lead: When something like t...
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The day he died, we weren’t expecting ...
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Legacy and Answers: Proud parents find m...
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Staying with the body: Mom didn’t feel...
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IVF: Because the diagnosis is so rare we...
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I'm learning more and more that there's ...
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His Name: We wanted something involving ...
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You have to take time for yourself and y...
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Being the Aunt: It wasn’t easy but I w...
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Nursing: Sacrificing some control, we ha...
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Being the Aunt: Staying with his body.
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There’s no bereavement group for aunts...
Video Collection
Lindsay, Bear and Dani (aunt)
Parents of Quinlan, who died at the age of 2 of a rare genetic illness BRAT1, and his younger brother August.
Learning our son had a rare genetic disease: It was a whirlwind.
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